Last Posted: Sep 24, 2022
- Personal Stories
Family Heart Foundation, September 2022 - Detecting Potentially Harmful and Protective Suicide-Related Content on Twitter: Machine Learning Approach.
Metzler Hannah et al. Journal of medical Internet research 2022 24(8) e34705 - Pinning Pink: Messages About Hereditary Breast Cancer Risk on Pinterest.
Miller Carrie A et al. Journal of cancer education : the official journal of the American Association for Cancer Education 2020 Aug - The Gene: An Intimate Story
NHGRI, 2019 - Mail-in DNA test results bring surprises about family history for many users
N Graf, Pew Research Center, August 6, 2019 - Genetic test solves mystery of family bleeding disorder
C Gallagher, Mayo Clinic Blog, 2019 - A Man On A Mission: How One Patient Journey Can Change The Course Of A Hereditary Cancer
N Fisher, Forbes, February 8, 2019 - Mom Opens Up About Life with Daughter Who Has Rare Genetic Disorder: 'She's a Happy Girl'
C Adams, People, January 3, 2019 - Content, evaluations and influences in newspaper coverage of predictive genetic testing: A comparative media content analysis from the United Kingdom and Switzerland.
Zimmermann Bettina M et al. Public understanding of science (Bristol, England) 2018 Dec 963662518816014 - Why I Wish I Hadn't Done Genetic Testing While I Was Pregnant
AE Murray, PopSugar, December 26, 2018 - Lynch Syndrome and Death Anxiety
G Hurst, Cure today, December 11, 2018 - Communication About Hereditary Cancers on Social Media: A Content Analysis of Tweets About Hereditary Breast and Ovarian Cancer and Lynch Syndrome.
Allen Caitlin G et al. Journal of cancer education : the official journal of the American Association for Cancer Education 2018 Dec - Reconciling a Hereditary Cancer Diagnosis
G Hurst, Cure Magazine, November 5, 2018 - Let's Talk Lynch: Rachel's story
YouTube video, September 2018 - Personal Stories from the New Era of Patient Focused Advocacy
NORD, October 2018 - Breast cancer survivor talks about BRCA
A Salinas, Fox 7, October 15, 2018 - Clinical DNA Analysis Using Next-Generation Sequencing: Past, Present, and Future-
NGS is Attending to Technological, Regulatory, and Educational Issues
A Scherer, GEN News, October 15, 2018 - The Doctor And The Boy In The Bubble
S Simon, NPR, October 13, 2018 - The Cost of Ovarian Cancer Prevention- Seven years ago, I was diagnosed with Lynch syndrome, a hereditary cancer condition which significantly increases my chances of developing early-onset cancer.
G Hurst, Cure Magazine, September 24, 2018 - She tried diet and exercise. But her high cholesterol came from her genes.
N Brown, American Heart Association, September 4, 2018 - This Is How I Told People About My BRCA Diagnosis And How They Responded
S Altshule, Bustle.com, AUgust 27, 2018 - 35 Years & Growing: Personal Stories of Patient Advocacy
National Organization for Rare Diseases, 2018 - Local Woman Crusades Against a Hidden Killer Which Science Now Makes Easier to Detect- Pasadena Group touts early detection of a genetic mutation which turns out to be among the most common genetic causes of heart disease
B Day et al, Pasadena Now, August 9, 2018 - Familial Hypercholesterolemia: Shining Light on a Serious Genetic Condition
K Wilemon, US News, August 7, 2018 - One womans race to defuse the genetic time bomb in her genes
A Regalado, Tech Review, July 23, 2018 - The Road to There`
C Herrera, American Heart Association Blog, July 16, 2018 - Years ago when my twin got breast cancer I took drastic action and am grateful I did
RO Selig, New Yorkt Times, May 2018 - Genetic Testing: A Wake Up Call
S Seim, the FH Foundation blog, July 12, 2018 - Our Journey and Destination
The FH Foundation, May 2018 - p53 and Me.
Elmore Shekinah N C et al. The New England journal of medicine 2018 May 378(21) 1962-1963
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Disclaimer: Articles listed in the Public Health Genomics and Precision Health Knowledge Base are selected by the CDC Office of Public Health Genomics to provide current awareness of the literature and news. Inclusion in the update does not necessarily represent the views of the Centers for Disease Control and Prevention nor does it imply endorsement of the article's methods or findings. CDC and DHHS assume no responsibility for the factual accuracy of the items presented. The selection, omission, or content of items does not imply any endorsement or other position taken by CDC or DHHS. Opinion, findings and conclusions expressed by the original authors of items included in the update, or persons quoted therein, are strictly their own and are in no way meant to represent the opinion or views of CDC or DHHS. References to publications, news sources, and non-CDC Websites are provided solely for informational purposes and do not imply endorsement by CDC or DHHS.